Sunday, September 22, 2013

Meet the Family ~ John

John, my eldest son, is 18 years old. He arrived into this world 5 weeks early and at 7lb 2 1/2 ounces (or 3.246kgs for those of you who aren't imperial savvy). He was welcomed by a team of Medical Staff, his dad (who cut the "cable") and my photography possessed sister whom I can happily say left her camera in the car at the time.

John was induced, delivered, detached and then decamped into a humidicrib for phototherapy as he had Jaundice. Thirteen days later he arrived in my Ward and we spent our first night together. A day later we went home.

Eight years on John was diagnosed with Aspergers Syndrome and OCD (Obsessive Compulsive Disorder). 


At the age of 12 John started experiencing most unusual sleep patterns which has resulted in a partial diagnosis of a condition that is considered quite common in blind persons but very rare in sighted individuals. We call it Non-24 hr sleep/wake syndrome but it is also known as: 

~ Free running Disorder
~ Hypernychthemeral disorder
~ Circadean Rhythm sleep disorder - free running type
~  Circadean Rhythm Disorder - non entrained type
~ Non-24-hr Circadean Rhythm Disorder


John has spent time in traditional schools, Homeschooling and Distance Education. At present he is near to completing a Certificate lll in Information, Digital Media and Technology (Web Technology) as an External Student of Tafe.

As a person John is witty, intelligent, unnervingly honest and a lot of fun. He excels in the area of Information Technology and has a remarkable aptitude for photography. He has opened my eyes to perspectives on life that are very different to my own. He is my firstborn and I feel so much love and pride for him. 


Keyboard


Is your child a newly ordained adult? I'd love to hear your experiences also. Drop a note in the comments box before you leave.


Footnote:

Aspergers Syndrome is now referred to as Autistic Spectrum Disorder after adjustment was made in the new DSM 5 - http://www.dsm5.org/Documents/Autism%20Spectrum%20Disorder%20Fact%20Sheet.pdf


Check my links:

Autistic Spectrums Disorder - mydr - Autistic spectrum disorder

Aspergers Syndrome -  Tony Attwood - Aspergers Syndrome


Non 24 Hr Sleep/Wake Syndrome - Wikipedia - Non 24 hour Sleep/Wake Syndrome



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